What I’d like to share now is how since my diagnosis I have met 2 camps of women; those who have bought in hook line and sinker to the fear mongering that most women experience in the face of a DCIS diagnosis and those who rebel and struggle to find peace and acceptance within themselves, their families and society in general. In case it isn’t clear, I fall within the latter group. Luckily I managed to get off the Crazy Train before it left the station, however I regularly encounter many women who are trying to get me to get back on at the very next stop.
Shortly after getting my diagnosis, I searched for a Facebook group on DCIS. I’m not usually much for Facebook or social media of any kind and I definitely was not one for a colloquial approach to medicine among a group of non-experts, however I needed to talk to someone who knew what I was going thru and more importantly someone who was approaching or had approached DCIS with an Acitive Surveillance Treatment Focus. The first group I joined was a rather large group; having over 3000 members. I must say in the first few weeks, I did not spend much time in the group and limited what I read. It wasn’t until 3 weeks in that I actually decided to post something. I wasn’t sure what to expect because all of the posts were about surgery and medication and women wanting to get started on their treatments as quickly as possible. This of course was the opposite of what I wanted; I wanted to slow down, to learn and really just ‘watch and wait’. This was my first attempt at seeking support:
Nancy Riopel Good morning all, I've been in the group for about 3 weeks. This is my first post. I'm feeling so alone. Did anyone else get their diagnosis because of pathology found in the tissue from breast reduction? So far I'm being told that because this was how it was found I don't have the same options as someone whose DCIS was found through mammogram or lump. I'd love to chat with someone in the same boat.